End of life and bereavement
Palliative care, end of life care and bereavement support
Definitions of palliative and end of life care
The Greater Manchester Dementia Palliative and End of Life Care Group reviewed definitions of palliative and end of life care and agreed the following:
Palliative care: A holistic approach focused on improving quality of life, available for anyone with a life-limiting condition.
End of life care: A holistic approach offered in the last year of life.
The group endorses that dementia should be recognised as a life-limiting condition and therefore palliative care should be available to people living with dementia, from the point of diagnosis until end of life.
Local palliative care support
- Bolton Hospice Wellbeing Hub - support and information for patients, families, and carers of people with a life-limiting illness in Bolton.
- Bolton Dementia Support at Home - home-based therapeutic activities for people living with dementia and their carers.
- Bolton Carers Support - support for unpaid carers in Bolton.
- Age UK Bolton – an independent local charity working with and for Bolton’s older population.
- Sahara – South Asian Dementia Support Service – Alzheimer’s Society - support for South Asian Communities in Greater Manchester affected by Dementia.
Planning ahead
Advance Care Planning can help people tell others what is important to them. This may include where they would prefer to be cared for, who they would like to be involved in decisions, and any wishes about treatment or support.
End of life care information and support
- NHS Continuing Healthcare - information about NHS funding for people with significant ongoing health needs - Public information leaflet: NHS continuing healthcare and NHS-funded nursing care - GOV.UK)
- Bolton Hospice Inpatient Care - specialist care for people with complex palliative and end of life care needs.
- Dementia UK - information about late-stage dementia and end of life care.
- Marie Curie - information about what end of life care is and the support available in the last year of life.
- Guidance on what to do when someone dies - including registering a death and the Tell Us Once service.
Bereavement support
Bereavement affects people in different ways. There is no right or wrong way to grieve. Some people find it helpful to talk to someone, while others may want practical information or time to process their loss.
If you need urgent help because you feel unable to keep yourself safe, call 999 or go to your nearest accident and emergency department.
Local bereavement support
- Bolton Hospice Bereavement Support
- Bereavement & Loss Counselling - 1Point
- Bolton NHS Foundation Trust Bereavement and Patient Service
- Bolton NHS Foundation Trust Chaplaincy Service
- Bolton Council of Mosques
Regional bereavement support
- Empowered Conversations
- Caribbean and African Health Network - Counselling Service – CAHN
- Greater Manchester Bereavement Service
National bereavement support and information
- Alzheimer's Society
- TIDE - Together In Dementia Everyday
- Cruse Bereavement Support - support for anyone who has experienced a bereavement
- Marie Curie Telephone Bereavement Support - telephone support for people who are grieving
- Sue Ryder - online and practical grief support
- The Good Grief Trust - information and support for people who are newly bereaved
- National Bereavement Service - practical and emotional support after a loss - Coping with Grief: Managing the Experience of Grief
- Child Bereavement UK - support for children, young people, families, and professionals
- Switchboard - support for LGBTQIA+ people
- ACAS (Advisory, Conciliation and Arbitration Service), is an independent UK public body that offers guidance on employment law, workplace policies - Leave and pay when someone dies - Time off work for bereavement